Sue Boucher
Post count: 21

Sorry for not responding to this thread sooner, Amanda, and thank you for sharing your thoughts and asking an important question. Assessing pain severity in a non-verbal child is not easy and the FLACC scale can be very helpful for non-verbal infants and children up to 7 years. But then you need to have healthcare professionals who are trained and who know how to assess the child’s pain using this scale. I would also think that relying on the reporting of a parent or carer who spends a lot of time with the child would be so valuable. Palliative care is most definitely about quality of life and a death which is as peaceful as possible, which includes ensuring good pain management. Unfortunately, this is not always possible, despite a doctor’s very best efforts.