[Thuli Temba]

#86298

In Pediatric palliative care children should not be imposed with decisions that parents or health workers make. The child has the right to know all the treatment plan. There wishes should always be honored. Children cannot be taken as small human bodies. Their treatment options and process must be explained to them according to their level of understanding. They have the right to accept or refuse treatment.

[Thuli Temba]

#86299

Informed consent should be seen as an essential part of health care practice; child must be included in decision making. Parental permission and childhood assent is an active process that engages patients, both adults and children, in their health care. Pediatric palliatve care is unique in that developmental maturation allows, over time, for increasing inclusion of the child’s and adolescent’s opinion in medical decision-making in clinical practice and research. Children must be communicated in the language that they understand.

[Nomabaso Pango]

#86305

I think it is true that children should be allowed to stand up for their decisions. We need to respect them even if they are dying, because their spirituality guides them what is right for their soul at that moment. If a dying child asks his or her parent to call a barber to cut his or her hair, call the barber and it’s something that comes from his, or her mind. The child will feel good when the cut has been done as well as the approval of the parent. This displays dignity towards the child, their mind feel being loved, trusted, hope and even if she/he dies, she/he will die in dignity. People should go back and read Sthembile’s and Naledi’s story. These stories are educating us to listen to the children. Thank you

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